Health Privacy Summit Videos by Speakers

Videos by:   Summits   |   Thumbnails   |   Speakers (below)   |   Subjects  

 

Aaron Titus

Identity Finder

• What is the Value of Health Data to Organized Crime?

 

Aasim Padela

University of Chicago

• Cultural Perspectives on Religion and Privacy Part 1 of 3
• Cultural Perspectives on Religion and Privacy Part 2 of 3
• Cultural Perspectives on Religion and Privacy Part 3 of 3

 

Adam Tanner

Fellow, Harvard University's Institute for Quantitative Social Science

• Mad Men: The Secret Origins of the Medical Data Business
• The Search for the Mystery Woman and Other Naked Truths Learned from Re-Identification
• theDataMap, Even More Places Your Health Data Goes

 

Adrian Gropper

Health URL.com
Patient Privacy Rights

• Assuring An Individual's Access to Her Own Health Records
• Consent for Research: Do We Need It?
• How do Social Media, Mobile Devices, Medical Devices and Implants, Online Health Websites, and Clouds Threaten Health Privacy?
• IntimateWearables and Big Data
• Limiting Patient Rights to Access Personal Health Data
• Patient Data in the Cloud: How Is It Used? How Is It Protected?
• Patients' use of Health Information Exchanges: Do they care? Can they get personal health data? How do they use it?
• Will the Apple Effect Lead to Privacy in Healthcare?

 

Alan Dahi

Gottfried Wilhelm Leibniz Universitat

• Health Data: A Bone of Contention between Patients and Researchers: Protecting Privacy and Security of Patient-controlled Health Data

 

Alan Westin

Professor of Public Law and Government Emeritus at Columbia University
Author, Privacy and Freedom

• How the American Public Views Patient Privacy and Health Technology Systems: What Ten Years of Surveys Tell Us
• What do Research and History Tell Us About Privacy Today?

 

Albert T. Gombis

Foreign affairs officer, U.S. Department of State

• Privacy as a Fundamental Human Right

 

Alexandra Thaler

Harvard College

• State Health Databases: Re-identification of patient records and expansion of theDataMap

 

Alison Rein

Academy Health

• Protecting Health Information in Research, Mental Health, and Genetics

 

Alvaro Bedoya

Director, Center for Privacy and Technology, Georgetown University Law Center

• Welcome to the Sixth International Summit on the Future of Health Privacy

 

Amy E. Nelson

Director of Legal Services, Whitman-Walker Health

• Health Privacy in the LGBTQIA Community, Electronic Health Records Systems and Sensitive Data

 

Andrea Matwyshyn

Wharton School, University of Pennsylvania
Northeastern University

• Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection
• Will the EU Privacy Shield and Data Regulation Affect the US?

 

Andrew Blumberg

University of Texas at Austin

• Consent and Segmentation of Data: The 2010 PCAST Report
• Summit Workgroups on Technology Solutions; Consumer Education; and, Principles

 

Andrew Dillon

Dean, School of Information, University of Texas at Austin

• First Do No Harm. Does Technology Harm Patients?
• Privacy in the New Ecology of lnformation

 

Andrew Litt

Dell Computers

• Docs and EHRs. How is the Physician-Patient Relationship Affected?

 

Andy Oram

O'Reilly Media

• Debate - That Individuals Should Maintain Their Own Health Data

 

Anil Jain

Explorys

• The Value of Health Data INSIDE Health Care

 

Anita Allen

University of Pennsylvania Law School

• An Ethical Duty to Protect Your Own Health Privacy
• Contrasting Beliefs about Privacy Protection in the Digital Era

 

Ann Cook

U.S. National Institutes of Health

• First Do No Harm. Does Technology Harm Patients?
• Is Genetic Privacy Threatened?

 

Ann Patterson

Medical ldentity Fraud Alliance

• The Low-Hanging Fruit: Why Data Breaches Continue

 

Anna Spencer

Sidley Austin LLP

• The EU's General Data Protection Regulations and its Impact on the U.S.
• Will the EU Privacy Shield and Data Regulation Affect the US?

 

Anne Tamar-Mattis

Legal Director, Interact advocates for Intersex Youth

• Privacy and the LGBTI Community

 

Anonymous

Patient

• Patient Stories About Privacy Loss
• Patient Story About Loss of Privacy

 

Aymeric Dupont

Counselor, Justice and Home Affairs, European Union Delegation to the US

• Will the EU Privacy Shield and Data Regulation Affect the US?

 

Barbara Evans

University of Houston Law Center

• Control of Patient Data—Health Information Exchanges
• Limiting Patient Rights to Access Personal Health Data
• Recent Developments in Genetic Privacy
• The Value of Health Data INSIDE Health Care

 

Barry Chaiken

Former Chairman HIMSS
Imprivata

• Control of Patient Data—Health Information Exchanges
• Is There Too Much or Too Little Regulation? Will States or Congress Regulate?
• Welcome to the Fifth International Summit on the Future of Health Privacy

 

Beatrice Covassi

Delegation of the European Union

• Does the U.S. Need E.U. Data Protections?: Should U.S Companies Meet E.U. Requirements?

 

Becina Ganther

Harvard College

• State Health Databases: Re-identification of patient records and expansion of theDataMap

 

Benedicte Callan

University of Texas at Austin

• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health

 

Benjamin West

Nightscout Project

• IntimateWearables and Big Data

 

Bill Fitzgerald

Founder, FunnyMonkey

• Somebody Call the Doctor! Stitching Up Student Privacy

 

Bill Turner

Allium Healthcare
HIPAA Privacy & lnformation Security Officer, Globalhealth

• Chief Information Officiers (CIOs) and Privacy 1 of 2
• Chief Information Officiers (CIOs) and Privacy Part 2 of 2
• IntimateWearables and Big Data

 

Bob Gregg

ID Experts

• The Low-Hanging Fruit: Why Data Breaches Continue
• What is the Value of Health Data to Organized Crime?

 

Bradley Malin

Vanderbilt University School of Medicine
Patient Centered Outcomes Research Network

• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

Brian Selfridge

Certified Information Systems Security Professional
Meditology Services

• The Omnibus Privacy Rule: Are We Done Now?

 

Bridget Asay

Attorney General's Office, State of Vermont

• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health

 

CAPT Michael Weiner

U.S. Defense Systems

• Docs and EHRs. How is the Physician-Patient Relationship Affected?

 

COL John Scott

Office of the Assistant Secretary of Defense, U.S. Department of Defense

• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)

 

Cameron Russell

Fordham University School of Law

• Somebody Call the Doctor! Stitching Up Student Privacy

 

Candice Weatherly,

Candice Weatherly,

• The Omnibus Privacy Rule: Are We Done Now?

 

Carl Gunter

University of Illinois

• Consent and Segmentation of Data: The 2010 PCAST Report

 

Cathy Betz

Source Healthcare Analytics

• Big Data - More Information and More Risks

 

Celeste Castillo-Lee

Program Manager for Patient and Family Centered Care, University of Michigan Health System
Patient Centered Outcomes Research Network

• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

Chip Pitts

Chair, Board of Directors, Electronic Privacy Information Center

• Will the EU Privacy Shield and Data Regulation Affect the US?

 

Chris Vickery

Security researcher and consultant

• Down the Rabbit Hole
• theDataMap, Even More Places Your Health Data Goes

 

Christian Hamann

Gleiss Lutz, Germany

• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health

 

Christo Wilson

Northeastern University

• How Will the Coming AI Revolution Transform Healthcare?

 

Claudia Pagliari

University of Edinburgh

• Privacy, Autonomy, and Power in a Smart, Connected World

 

Cliff Baker

Meditology Services

• Chief Information Officiers (CIOs) and Privacy 1 of 2
• Chief Information Officiers (CIOs) and Privacy Part 2 of 2
• Privacy and the New Health Care Models: Real World Problems

 

Clint Phillips

Chief Executive Officer, Medici and 2nd.MD

• Companies Competing for Privacy: Has privacy innovation begun?

 

Congressman Ed Markey (D-MA)

U.S. House of Representatives

• Louis D Brandeis Award to Congressman Joe Barton (R-TX) and to Congressman Ed Markey (D-MA)

 

Congressman Joe Barton (R-TX)

U.S. House of Representatives

• Louis D Brandeis Award to Congressman Joe Barton (R-TX) and to Congressman Ed Markey (D-MA)

 

Cora Han

U.S. Federal Trade Commission

• The Value of Health Data OUTSIDE Healthcare

 

Corey Weigert

Vice President, Product Management, Watson Health, IBM Corporation

• How Will the Coming AI Revolution Transform Healthcare?

 

Corinne Carey

New York Civil Liberties Union (ACLU)

• Big Data - More Information and More Risks
• Contrasting Beliefs about Privacy Protection in the Digital Era
• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)
• Health Data Exchange: What Is It And What Should You Do? Opt-In or Opt-Out?

 

Craig Konnoth

University of Pennsylvania Law School

• As Health Data Exchanges Grow, What Rights do Patients Have?
• Watching Wellness in the Workplace

 

Dale King

Director, Family Policy Compliance Office, US Department of Education

• Somebody Call the Doctor! Stitching Up Student Privacy

 

Damon Davis

Office of the National Coordinator, U.S. Department of Health and Human Services

• Do You Know Where Your Health Data Is?

 

Daniel (Dazza) Greenwood

MIT Media Lab

• IT Solutions for Privacy and Research

 

David (Doc) Searls

Harvad University

• The Value of Health Data OUTSIDE Healthcare

 

David Chao

Chief Technology Officer, Crimson

• The Value of Health Data INSIDE Health Care

 

David Huseby

Security Maven, The Linux Foundation’s Hyperledger Project

• Blockchain Technology and Health Data: How it works, what can it add, and what's all the hype about?

 

David Jacobs

Electronic Privacy Information Center

• Big Data, Big Problems, Big Solutions?

 

David Muntz

Office of the National Coordinator, U.S. Department of Health and Human Services

• The Value of Health Data INSIDE Health Care

 

David Staggs

Jericho Systems

• Do You Know Where Your Health Data Is?
• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)

 

David W. Hilgers

Brown McCarroll, L.L.P.
American Bar Association, Health Privacy

• The 2012 Health Privacy Agenda

 

David Wanser

Senior Clinical Consultant for Intellica

• Control of Patient Data—Health Information Exchanges
• Summit Workgroups on Technology Solutions; Consumer Education; and, Principles

 

David Warner

Lyndon B. Johnson School of Public Affairs, University of Texas at Austin

• The 2012 Health Privacy Agenda

 

David Wiggin

Teradata

• The Value of Health Data OUTSIDE Healthcare

 

Deanna Fei

Author, Girl ln Glass

• Whose Distressed Baby ls lt? The Growing Threat to Our Medical Privacy in the American Workplace

 

DebbieBucci

Office of the National Coordinator, U.S. Department of Health and Human Services

• IntimateWearables and Big Data

 

Deborah C. Peel

Patient Privacy Rights

• Closing Day 1 of the 7th International Summit
• Closing Remarks for the 7th International Summit
• Closing, Celebration of Privacy 2017
• Day 2 of 4th International Summit
• From Hippocrates to Human Rights
• Louis D Brandeis Award to Congressman Joe Barton (R-TX) and to Congressman Ed Markey (D-MA)
• Patient Stories About Privacy Loss
• Privacy and Public Spaces: Privacy and Epidemics, School Laptops and Spying
• The 2012 Health Privacy Agenda
• Welcome to the Fifth International Summit on the Future of Health Privacy
• Welcome to the First International Summit on the Future of Health Privacy
• Welcome to the Fourth International Summit on the Future of Health Privacy
• Welcome to the Second International Summit on the Future of Health Privacy
• Welcome to the Seventh International Summit on the Future of Health Privacy
• Welcome to the Sixth International Summit on the Future of Health Privacy
• Welcome to the Third International Summit on the Future of Health Privacy

 

Deborah Golden

Deloitte

• Big Data, Big Problems, Big Solutions?

 

Deborah Hurley

Hurley Consulting

• Big Data, Big Problems, Big Solutions?
• Surveillance of Healthcare Data: Who's Looking? What Data Are They Using? What Happened To Fair Information Practices?

 

Debra Bromson

AstraZeneca Pharmaceuticals LP

• Big Data - More Information and More Risks

 

Debra Diener

Privacy and Identity Management Consultant

• Healthcare Laws: U.S. State and International Perspectives
• Patient Data in the Cloud: How Is It Used? How Is It Protected?

 

Demelza Baer

American Civil Liberties Union

• Newtown Shooting and the Privacy of Psychiatric Data Part 1 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 2 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 3 of 3

 

Deven McGraw

Center for Democracy and Technology
Manatt, Phelps & Phillips, LLP
Principal Deputy Director for Health Information Privacy, U.S. Department of Health and Human Services

• Do Wearables, Injestables and Apps Leak Health Data?
• How do Social Media, Mobile Devices, Medical Devices and Implants, Online Health Websites, and Clouds Threaten Health Privacy?
• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research
• Protecting Health Information in Research, Mental Health, and Genetics

 

Doc Searls

Author, The Intention Economy
Co-Author, The Intention Economy

• Companies Competing for Privacy: Has privacy innovation begun?

 

Donna Cryer

President and CEO, Global Liver lnstitute
Patient Centered Outcomes Research Network

• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

Drew Mitnick

Junior Policy Counsel, Access Now

• Will the EU Privacy Shield and Data Regulation Affect the US?

 

Duane Decouteau

Jericho Systems Corporation

• Consent and Segmentation of Data: The 2010 PCAST Report

 

Ed Abrahams

Personalized Medicine Coalition

• Is Genetic Privacy Threatened?

 

Farzad Mostashari, MD

National Coordinator for Health IT, U.S. Health and Human Services

• Creating a Culture of Privacy & Security Awareness

 

Fausto Meza

Doctors Hospital at Renaissance

• Docs and EHRs. How is the Physician-Patient Relationship Affected?

 

Frank Pasquale

Seton Hall Law School
Carey School of Law, University of Maryland

• Does the U.S. Need E.U. Data Protections?: Should U.S Companies Meet E.U. Requirements?
• How Will the Coming AI Revolution Transform Healthcare?
• Is There Too Much or Too Little Regulation? Will States or Congress Regulate?
• Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection

 

G.S. Hans

Center for Democracy and Technology

• Healthcare Laws: U.S. State and International Perspectives

 

Gary LaFever

Chief Executive Officer, Hogan Lovells

• The EU's General Data Protection Regulations and its Impact on the U.S.

 

Gen Kelsang Varahi

Vajrayogini Buddhist Center

• Cultural Perspectives on Religion and Privacy Part 1 of 3
• Cultural Perspectives on Religion and Privacy Part 2 of 3
• Cultural Perspectives on Religion and Privacy Part 3 of 3

 

Glenn Tucker

Chief Medical Information Officer and Chief of Internal Medicine, Sturdy Memorial Hospital
Chairman, Massachusetts Medical Society's Committee on IT

• Patients' use of Health Information Exchanges: Do they care? Can they get personal health data? How do they use it?

 

H. Westley Clark

Substance Abuse and Mental Health Services Administration, U.S. Health and Human Services

• Consent and Segmentation of Data: The 2010 PCAST Report
• Docs and EHRs. How is the Physician-Patient Relationship Affected?
• Newtown Shooting and the Privacy of Psychiatric Data Part 1 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 2 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 3 of 3

 

Harshita Gupta

Harvard College

• State Health Databases: Re-identification of patient records and expansion of theDataMap

 

Helen Nissenbaum

New York University

• Contrasting Beliefs about Privacy Protection in the Digital Era

 

Helen Oscislawski

Oscislawski LLC

• Health Data Exchange: What Is It And What Should You Do? Opt-In or Opt-Out?

 

Hirdey Bhathal

Zibdy Health

• As Health Data Exchanges Grow, What Rights do Patients Have?

 

Hugo Campos

ePatient

• Limiting Patient Rights to Access Personal Health Data

 

Ifeoma Ajunwa

Cornell University
Berkman Klein Center, Harvard University

• Workplace Wellness and Employee Genetic Testing: Should Employers and Insurers have Access to Genetic Tests?

 

Ifeoma Iajunwa

David Clark School of Law, University fo the District of Columbia

• Unlimited Workplace Surveillance
• Watching Wellness in the Workplace

 

Isabelle Falque-Pierrotin

President, French Data Protection Authority
Chair, European Union's Article 29 Working Party

• The GDPR and the European Vision for the Future of the Digital World

 

J.J. Nietfield

University Medical Center Utrecht

• Protecting Health Information in Research, Mental Health, and Genetics

 

Jacob Simmons

Senior, Brighton High School

• Louis D. Brandeis: Standing for the People

 

James Koenig

Co-Leader, Health Information Privacy & Security Practice, PricewaterhouseCoopers

• Big Data - More Information and More Risks

 

James Pyles

Powers, Pyles, Sutter & Verville

• Contrasting Beliefs about Privacy Protection in the Digital Era
• Health Information Privacy and Health IT: Where Are We and How Did We Get Here?
• Is There Too Much or Too Little Regulation? Will States or Congress Regulate?
• Newtown Shooting and the Privacy of Psychiatric Data Part 1 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 2 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 3 of 3
• Summit Workgroups on Technology Solutions; Consumer Education; and, Principles

 

Jana Kasperkevic

The Guardian

• Do Wearables, Injestables and Apps Leak Health Data?

 

Janelle Burns

Corporate Privacy & Security Officer, Baptist Memorial Health Care Corporation

• Limiting Patient Rights to Access Personal Health Data

 

Jean McEwen

Program Director, Division of Genomics and Society, National Human Genome Research lnstitute

• Recent Developments in Genetic Privacy

 

Jeff Chester

Center for Democracy and Technology

• Do Wearables, Injestables and Apps Leak Health Data?

 

Jeffrey Rosen

George Washington University

• What do Research and History Tell Us About Privacy Today?

 

Jeremy Grant

Senior Executive Advisor for Identity Management, National Institute of Standards and Technology

• A Conversation with Jeremy Grant

 

Jeremy Gruber

Council for Responsible Genetics

• Is Genetic Privacy Threatened?

 

Jessica Rich

U.S. Federal Trade Commission, Bureau of Consumer Protection

• Contrasting Beliefs about Privacy Protection in the Digital Era

 

Ji Su Yoo

Institute for Quantitative Social Science, Harvard University

• State Health Databases: Re-identification of patient records and expansion of theDataMap
• Top Data Detective Award to Ji Su Yoo

 

Jim Pyles

Powers, Pyles, Sutter & Verville

• Contrasting Beliefs about Privacy Protection in the Digital Era

 

Joan Antokol

Park Legal LLC

• Assuring An Individual's Access to Her Own Health Records

 

Joanne McNabb

Certified Information Systems Security Professional (CISSP)
Office of the Attorney General, California Department of Justice

• Healthcare Laws: U.S. State and International Perspectives

 

Jocelyn Samuels

Director, Office for Civil Rights, US Department of Health and Human Services

• A Conversation with Jocelyn Samuels

 

Joe Ali

Patient Centered Outcomes Research Network
Johns Hopkins Berman lnstitute of Bioethics

• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

Joe Cannataci

United Nations Human Rights Council
Head, Department of Information Policy and Governance, University of Malta

• Is Big Data Effectively the Beginning of the End of Privacy in Healthcare?

 

Joe V. Selby

Patient Centered Outcomes Research Network

• IT Solutions for Privacy and Research
• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

John Fleming

Deputy Assistant Secretary for Health Technology Reform, U.S. Department of Health and Human Services

• An Overview of Technology and the Health System

 

John Havens

Executive Director, IEEE Global Initiative for Ethical Considerations in Artificial Intelligence and Autonomous Systems

• Delivering Healthcare in the Age of Artificial Intelligence

 

John McDaniel

NetApp

• Patient Data in the Cloud: How Is It Used? How Is It Protected?

 

John Sabo

Computer Associates

• First Do No Harm. Does Technology Harm Patients?

 

John Verdi

Electronic Privacy Information Center
Future of Privacy Forum

• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health
• Will the Apple Effect Lead to Privacy in Healthcare?

 

John Wilbanks

Chief Commons officer, Sage Bionetworks

• IT Solutions for Privacy and Research

 

Jon Neiditz

Nelson Mullins Riley & Scarborough

• How do Social Media, Mobile Devices, Medical Devices and Implants, Online Health Websites, and Clouds Threaten Health Privacy?

 

Jordan Robertson

Bloomberg News

• Watching Wellness in the Workplace
• What is the Value of Health Data to Organized Crime?

 

Joseph Conn

Modern Healthcare

• The Value of Health Data INSIDE Health Care

 

Josephine Wolff

Berkman Center for Internet and Society, Harvard University

• The Low-Hanging Fruit: Why Data Breaches Continue

 

Josh Mandel

Health IT Ecosystem Lead, Verily (Google Life Sciences)

• Patients' use of Health Information Exchanges: Do they care? Can they get personal health data? How do they use it?

 

Joy Pritts

Office of the National Coordinator, U.S. Department of Health and Human Services

• Assuring An Individual's Access to Her Own Health Records
• Control of Patient Data—Health Information Exchanges
• IntimateWearables and Big Data
• Is There Too Much or Too Little Regulation? Will States or Congress Regulate?
• Putting the I in Health IT Privacy and Security: How Consumers Can be Part of the Policy-Making Process

 

Judge Clay Jenkins

Director of Homeland Security and Emergency Management, Dal las County, Texas

• Privacy and Public Spaces: Privacy and Epidemics, School Laptops and Spying

 

Julian Ranger

Chairman, digi.me

• Companies Competing for Privacy: Has privacy innovation begun?

 

Kaliya Hamlin

Personal Data Ecosystem Consortium

• Surveillance of Healthcare Data: Who's Looking? What Data Are They Using? What Happened To Fair Information Practices?

 

Karen DeSalvo

Office of the National Coordinator, U.S. Department of Health and Human Services

• A Conversation with Karen DeSalvo

 

Kate Black

Privacy Officer and Corporate Counsel, 23andMe

• Workplace Wellness and Employee Genetic Testing: Should Employers and Insurers have Access to Genetic Tests?

 

Kathryn Montgomery

American University

• Do Wearables, Injestables and Apps Leak Health Data?

 

Kathryn Serkes

Chair & Co-Founder, Doctor Patient Medical Association

• As Health Data Exchanges Grow, What Rights do Patients Have?
• Is Genetic Privacy Threatened?
• Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection
• Summit Workgroups on Technology Solutions; Consumer Education; and, Principles
• The Value of Health Data INSIDE Health Care

 

Kellan E. Baker

Senior Fellow, LGBT Research and Communications Project, Center for american Progress

• Health Privacy in the LGBTQIA Community, Electronic Health Records Systems and Sensitive Data
• Privacy and the LGBTI Community

 

Kelly Caine

School of Computing, Clemson University

• Consent for Research: Do We Need It?

 

Khaliah Barnes

Electronic Privacy lnformation Center

• Somebody Call the Doctor! Stitching Up Student Privacy

 

Kim Little

Lexis Nexis

• Patient Data in the Cloud: How Is It Used? How Is It Protected?

 

Kimberly Gray

IMS Health

• Debate - That Individuals Should Maintain Their Own Health Data
• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health

 

Kirk Nahra

Wiley Rein LLP

• Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection

 

Kurt Long

FairWarning

• Big Data - More Information and More Risks
• Day 2 of the 7th International Summit
• Delivering Healthcare in the Age of Artificial Intelligence

 

Lara Ballard

U.S. Department of State

• Does the U.S. Need E.U. Data Protections?: Should U.S Companies Meet E.U. Requirements?

 

Latanya Sweeney

Carnegie Mellon University
Harvard University
Chief Technology Officer, U.S. Federal Trade Commission

• A Conversation with Jeremy Grant
• Big Data, Big Problems, Big Solutions?
• Louis D Brandeis Award to Latanya Sweeney
• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health
• What's new with theDataMap: Tracking flows of personal information
• theDataMap Update: All the Places Your Health Data Goes
• theDataMap, Even More Places Your Health Data Goes
• theDataMap: All the Places Your Medical Data Goes

 

Lawrence O. Gostin

O'Neill Institute for National & Global Health Law

• The Fifth International Summit on the Future of Health Privacy
• Welcome to the Fourth International Summit on the Future of Health Privacy
• Welcome to the Second International Summit on the Future of Health Privacy
• Welcome to the Third International Summit on the Future of Health Privacy

 

Lee Tien

Electronic Frontier Foundation

• Consent and Segmentation of Data: The 2010 PCAST Report
• How do Social Media, Mobile Devices, Medical Devices and Implants, Online Health Websites, and Clouds Threaten Health Privacy?
• Summit Workgroups on Technology Solutions; Consumer Education; and, Principles

 

Leo Dittemore

Healthcare Partners

• Chief Information Officiers (CIOs) and Privacy 1 of 2
• Chief Information Officiers (CIOs) and Privacy Part 2 of 2
• Privacy and the New Health Care Models: Real World Problems

 

Leon Rodriguez

Director, Office for Civil Rights, U.S. Department of Health and Human Services

• Information is Powerful Medicine

 

Lillie Coney

Electronic Privacy Information Center

• First Do No Harm. Does Technology Harm Patients?

 

Linda Rodriguez

U.S. National Institutes of Health

• Is Genetic Privacy Threatened?

 

Lindsay F. Wiley

Washington College of Law, American University

• Watching Wellness in the Workplace

 

Lisa Gallagher

Managing Director, Pricewaterhouse Coopers advisor Services, LLC

• IT Solutions for Privacy and Research

 

Lisa Matsubara

Legal Counsel, California Medical Association

• How Private are Your Prescriptions?: The Importance of Access Restrictions for PDMPs

 

Lisa Schlager

Facing Our Risk of Cancer Empowered

• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

Lucia Savage

Chief Privacy Officer, Office of the National Coordinator, U.S. Department of Health and Human Services

• Looking Around the Corner - Emerging lssues in Electronic Health lnformation and Privacy

 

M. Peter Adler

Systems Research and Applications Corporation (SRA) International

• Chief Information Officiers (CIOs) and Privacy 1 of 2
• Chief Information Officiers (CIOs) and Privacy Part 2 of 2

 

Magdalena Goralczyk

Gottfried Wilhelm Leibniz Universitat

• Health Data: A Bone of Contention between Patients and Researchers: Protecting Privacy and Security of Patient-controlled Health Data
• Promoting Research While Respecting Privacy: The Promise & Challenge of Using Patient Healthcare Data in Research

 

Maneesha Mithal

U.S. Federal Trade Commission

• First Do No Harm. Does Technology Harm Patients?
• Patient Data in the Cloud: How Is It Used? How Is It Protected?
• The Low-Hanging Fruit: Why Data Breaches Continue

 

Marc Natter

Boston Children’s Hospital

• IT Solutions for Privacy and Research

 

Marc Rotenberg

Executive Director, Electronic Privacy Information Center

• The Constitution and Privacy: Why the Supreme Court Cares

 

Marcy Wilder

Hogan Lovells

• Is There Too Much or Too Little Regulation? Will States or Congress Regulate?

 

Mariann Yeager

Healtheway

• Do You Know Where Your Health Data Is?

 

Mark Frisse

Vanderbilt University

• Control of Patient Data—Health Information Exchanges

 

Mark Greenblatt

Greenblatt

• How Private are Your Prescriptions?: The Importance of Access Restrictions for PDMPs

 

Mark Jacobs

Delaware Health Information Network

• Health Data Exchange: What Is It And What Should You Do? Opt-In or Opt-Out?

 

Mark Luker

Networking and Information Technology Research and Development, U.S. Federal Government

• Big Data, Big Problems, Big Solutions?

 

Mark Rothstein

University of Louisville School of Medicine

• Big Data - More Information and More Risks
• Do young people care about health privacy? Is compelled disclosure of health information a major privacy issue?
• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)
• Louis D Brandeis Award to Mark A. Rothstein
• Protecting Health Information in Research, Mental Health, and Genetics
• Recent Developments in Genetic Privacy
• Welcome to the Celebration of Privacy

 

Mark Scrimshire

Entrepreneur-in-Residence, US Department of Health and Human Services

• Limiting Patient Rights to Access Personal Health Data

 

Masao Horibe

Professor Emeritus, Hitotsubashi University
Chairman, Specific Personal lnformation Protection Commission, Government of Japan

• Louis D Brandeis Award to Masao Horibe
• The Evolution of Privacy in Japan Over the Past Half-Century

 

Matt Daniels

Good of all

• Privacy as a Fundamental Human Right

 

Melvin Urofsky

Professor of Law and Public Policy, Virginia Commonwealth University
Author, Louis D. Brandeis: A Life

• Louis Brandeis and the Origins of a Right to Priavcy

 

Michael Lavers

International News Editor, Washington Blade

• Privacy and the LGBTI Community

 

Michael Stearns

e-MDs

• Control of Patient Data—Health Information Exchanges
• Docs and EHRs. How is the Physician-Patient Relationship Affected?

 

Michelle DeMooy

Consumer Action
Center for Democracy and Technology

• Control of Patient Data—Health Information Exchanges
• Debate - That Individuals Should Maintain Their Own Health Data
• Summit Workgroups on Technology Solutions; Consumer Education; and, Principles
• The Low-Hanging Fruit: Why Data Breaches Continue
• The Value of Health Data OUTSIDE Healthcare
• Watching Wellness in the Workplace
• Will the Apple Effect Lead to Privacy in Healthcare?
• Workplace Wellness and Employee Genetic Testing: Should Employers and Insurers have Access to Genetic Tests?

 

Micky Tripathi,

Massachusetts eHealth Collaborative

• Consent for Research: Do We Need It?

 

Mike Davis

Veterans Health Administration

• Control of Patient Data—Health Information Exchanges
• Health Data Exchange: What Is It And What Should You Do? Opt-In or Opt-Out?

 

Mr. and Mrs. Robbins

Parent

• Privacy and Public Spaces: Privacy and Epidemics, School Laptops and Spying

 

Nancy Barto

Arizona State Senate

• Contrasting Beliefs about Privacy Protection in the Digital Era

 

Natasha Singer

New York Times

• The Value of Health Data OUTSIDE Healthcare

 

Nathan Wessler

American Civil Liberties Union

• How Private are Your Prescriptions?: The Importance of Access Restrictions for PDMPs
• Surveillance of Healthcare Data: Who's Looking? What Data Are They Using? What Happened To Fair Information Practices?

 

Niam Yaraghi

Brookings Institute

• As Health Data Exchanges Grow, What Rights do Patients Have?

 

Nicolas Terry

McKinney School of Law, Indiana University

• How do Social Media, Mobile Devices, Medical Devices and Implants, Online Health Websites, and Clouds Threaten Health Privacy?
• Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection
• The Omnibus Privacy Rule: Are We Done Now?
• Will the Apple Effect Lead to Privacy in Healthcare?

 

Nikolaus Forgo

Institute for Legal Informatics at Leibniz Universität Hannover
Professor of Law, Chief Information Officer, Privacy Officer, and Co-Director of the Institute for Legal Informatics at Leibniz Universität Hannover

• Autonomy. Dignity. Freedom. European Approaches to Data Protection in Medical Research and Treatment
• Companies Competing for Privacy: Has privacy innovation begun?
• Delivering Healthcare in the Age of Artificial Intelligence
• Louis D Brandeis Award to Nikolaus Forgo

 

Omar Khawaja

Verizon
Highmark

• Chief Information Officiers (CIOs) and Privacy 1 of 2
• Chief Information Officiers (CIOs) and Privacy Part 2 of 2
• Privacy and the New Health Care Models: Real World Problems

 

Pablo Molina

Georgetown Law

• Cultural Perspectives on Religion and Privacy Part 1 of 3
• Cultural Perspectives on Religion and Privacy Part 2 of 3
• Cultural Perspectives on Religion and Privacy Part 3 of 3
• First Do No Harm. Does Technology Harm Patients?

 

Patricia A. Rehmer

Commissioner, Department of Mental Health and Addiction Services, State of Connecticut

• Newtown Shooting and the Privacy of Psychiatric Data Part 1 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 2 of 3
• Newtown Shooting and the Privacy of Psychiatric Data Part 3 of 3

 

Paul Brandeis Raushenbush

Great-grandson, Supreme Court Justice Louis D. Brandeis
President and CEO, Interfaith Alliance

• A Tribute to Louis D. Brandeis

 

Paul Hattis

Tufts University Medical School

• Surveillance of Healthcare Data: Who's Looking? What Data Are They Using? What Happened To Fair Information Practices?

 

Paul M. Tiao

Hunton & Williams LLP

• Will the Apple Effect Lead to Privacy in Healthcare?

 

Peter Bootsma

Royal Netherlands Embassy

• Big Data, Big Problems, Big Solutions?

 

Peter Hustinx

European Data Protection Supervisor

• A Health Check on Data Privacy
• Louis D Brandeis Award to Peter Hustinix
• Louis D Brandeis Award to Peter Hustinx

 

Peter Levin

Center for a New American Security

• Assuring An Individual's Access to Her Own Health Records

 

Peter Schaar

Chairman, European Academy for Freedom of Information and Data Protection, Germany
German Federal Commissioner for Data Protection

• Day 2 of 4th International Summit
• Louis D Brandeis Award to Peter Schaar
• Privacy In Times of Big Data

 

Phil Booth

medConfidential

• Consent for Research: Do We Need It?
• Does the U.S. Need E.U. Data Protections?: Should U.S Companies Meet E.U. Requirements?

 

Randy Farmer

Chief Operating Officer, Delaware Health lnformation Network

• As Health Data Exchanges Grow, What Rights do Patients Have?
• Limiting Patient Rights to Access Personal Health Data
• Patients' use of Health Information Exchanges: Do they care? Can they get personal health data? How do they use it?

 

Ranieri Guerra

Italian Embassy

• Healthcare Laws: U.S. State and International Perspectives
• The Value of Health Data OUTSIDE Healthcare

 

Reverend J. Michael Little

Friendship Baptist Church

• Cultural Perspectives on Religion and Privacy Part 1 of 3
• Cultural Perspectives on Religion and Privacy Part 2 of 3
• Cultural Perspectives on Religion and Privacy Part 3 of 3

 

Richard Thoreson

Substance Abuse and Mental Health Services Administration, U.S. Health and Human Services

• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)

 

Robert Destro

The Catholic University of America's Columbus School of Law in Washington, D.C.

• Privacy as a Fundamental Human Right

 

Robert L. Hutchings

Dean of the Lyndon B. Johnson School of Public Affairs, University of Texas at Austin

• Welcome to the First International Summit on the Future of Health Privacy

 

Robert M. Kolodner

Co-founder and President, Collaborative Transformations, LLC
Executive Vice President & Chief Health Informatics Officer for Open Health Tools, Inc.

• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)

 

Romulo Juarez

Accenture

• HIEs: What We Know and Don't Know, Data Segmentation, & Patient-Centered Options (e.g., opt-in/opt-out)

 

Ron Ross

National Institute of Standards and Technology

• What is the Value of Health Data to Organized Crime?

 

Ron Walters

MD Anderson Cancer Center

• Assuring An Individual's Access to Her Own Health Records
• Consent for Research: Do We Need It?

 

Ross Anderson

University of Cambridge

• Contrasting Beliefs about Privacy Protection in the Digital Era

 

Ryan Pyle

Utah Firefighter

• How Private are Your Prescriptions?: The Importance of Access Restrictions for PDMPs

 

Samantha Crane

Director of Public Policy, Autistic Self Advocacy Network

• Privacy and the LGBTI Community

 

Sandy Pentland

MIT
Advisor, UN Secretary General's Office, World Economic Forum

• A World That Counts
• Louis D Brandeis Award to Sandy Pentland

 

Scott Monteith

Michigan State University

• Docs and EHRs. How is the Physician-Patient Relationship Affected?
• Patient Story About Loss of Privacy

 

Shahid Shah

Netspective Communications

• A Conversation with Jocelyn Samuels
• A Conversation with Karen DeSalvo
• The EU's General Data Protection Regulations and its Impact on the U.S.
• Welcome to the Fourth International Summit on the Future of Health Privacy

 

Sharon Terry

President and CEO, Genetic Alliance

• Recent Developments in Genetic Privacy

 

Shaun Grannis

Indiana University School of Medicine

• Do You Know Where Your Health Data Is?

 

Sherri Morgan

National Association of Social Workers

• The Omnibus Privacy Rule: Are We Done Now?

 

Sonia Suter

George Washington University Law School

• Protecting Health Information in Research, Mental Health, and Genetics

 

Stacey A. Tovino

UNLV Health Law Program, William S. Boyd School of Law, University of Nevada, Las Vegas

• The EU's General Data Protection Regulations and its Impact on the U.S.

 

Stephania H. Griffin

Veterans Health Administration

• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health

 

Stephanie Perrin

University of Toronto

• Consent and Segmentation of Data: The 2010 PCAST Report

 

Stephen Palmer

Office of e-Health Coordination at Texas Health and Human Services Commission

• Consent and Segmentation of Data: The 2010 PCAST Report

 

Steve Steffensen

Telemedicine and Advanced Technology Research Center, U.S. Army

• How do Social Media, Mobile Devices, Medical Devices and Implants, Online Health Websites, and Clouds Threaten Health Privacy?

 

Stu Vaeth

SecureKey

• The Low-Hanging Fruit: Why Data Breaches Continue

 

Susan McAndrew

Office for Civil Rights, U.S. Department of Health and Human Services

• The Omnibus Privacy Rule: Are We Done Now?

 

Thomas Welch

Managing Director, American International Regulatory Coherence Institute
Counsellor, Thomas Welch Law

• Patients' use of Health Information Exchanges: Do they care? Can they get personal health data? How do they use it?

 

Tim Andrews

Booz Allen Hamilton

• Do You Know Where Your Health Data Is?

 

Todd Park

U.S. Chief Technology Officier of the United States

• Todd Park, U.S. Chief Technology Officier of the United States

 

Trevor Hoppe

University of Albany, SUNY

• Health Privacy in the LGBTQIA Community, Electronic Health Records Systems and Sensitive Data

 

Vikash Mansinghka

Research Scientist, Probabilistic Computing Project, MIT

• Augmenting Human and Machine Intelligence to Improve Medical Care

 

Wes Rishel

Gartner

• Consent and Segmentation of Data: The 2010 PCAST Report

 

William Pewen

Marshall University
Consultant and Author

• Does the U.S. Need E.U. Data Protections?: Should U.S Companies Meet E.U. Requirements?
• Health Data: A Bone of Contention between Patients and Researchers: Protecting Privacy and Security of Patient-controlled Health Data
• Workplace Wellness and Employee Genetic Testing: Should Employers and Insurers have Access to Genetic Tests?

 

William Sage

University of Texas at Austin School of Law

• First Do No Harm. Does Technology Harm Patients?
• Is Genetic Privacy Threatened?
• Secondary Uses of Personal Health Information in Health Databases: Implications of Sorrell vs. IMS Health

 

William Yasnoff

Health lnformation Technology Consultant

• Health Data: A Bone of Contention between Patients and Researchers: Protecting Privacy and Security of Patient-controlled Health Data