Health Privacy Summits
More than 200 Videos by: Summits (below) | Thumbnails | Speakers | Subjects
Patient Privacy Rights convenes the International Summit on the Future of Health Privacy (“Health Privacy Summit”), our flagship annual gathering dedicated to protecting health data in the digital age. Each year, the Summit brings together globally recognized experts to confront emerging privacy risks—from electronic health records and expanding data sharing to large-scale analytics, AI, and the rapid growth of consumer apps and wearables.
Below you'll find links to past convenings, with full programs and individual session videos featuring a distinguished roster of keynote speakers and panelists. Each convening also honors exceptional contributions through the Louis D. Brandeis Privacy Award and the Top Data Detective Award.
Seventh International Summit on the Future of Health Privacy |
Is Health Privacy a Human Right?Topics: Human Rights, European Union General Data Protection Regulation (GDPR), Health Privacy in the LGBTQIA Community, Blockchain Technology and Health Data, Re-identification of State Health Databases, Workplace Wellness Programs, Employee Genetic Testing, Healthcare Information Exchanges, Health Privacy Attitudes, Healthcare in the Age of AI, Privacy and Prescriptions, theDataMap Documents More Flows of Personal Health Data Sharing, Companies Competing for Privacy. Speakers: Deborah Peel, Isabelle Falque-Pierrotin, Nikolaus Forgo, Shabid Shah, Gary LaFever, Anna Spencer, Stacey Tovino, Kellan Baker, Trevor Hoppe, Amy Nelson, David Huseby, Ji Su Yoo, Becina Ganther, Harshita Gupta, Alexandra Thaler, Ifeoma Ajunwa, Kate Black, Michelle De Mooy, William Pewen, Thomas Welch, Randy Farmer, Adrian Grooper, Josh Mandel, Glenn Tucker, Mark Rothstein, Vikash Mansinghka, Kurt Long, John Fleming, John Havens, Kurt Long, Nathan Wessler, Mark Greenblatt, Lisa Matsubara, Ryan Pyle, Latanya Sweeney, Jacob Simmons, and Paul Brandeis Raushenbush. | |
Sixth International Summit on the Future of Health Privacy |
Is Big Data the Beginning of the End for Privacy in Healthcare?Topics: Big Data, Human Rights, Patient Harms, Privacy and Autonomy, Wearables, Ingestibles, Health Apps, European Regulation Influence in the US, Health Data Exchanges, Health Privacy in the LGBTI Community, theDataMap Documents More Flows of Personal Health Data Sharing, Workplace Surveillance, Medical Data Businesses, Privacy Solutions, Privacy Research, AI Transformation of Medicine, Apple Computers and Privacy Marketing. Speakers: Alvaro Bedoya, Deborah Peel, Joe Cannataci, Adam Tanner, Deanna Fei, Mary Ebeling, Carolyn B., Claudia Pagliari, Jana Kasperkevic, Kathhryn Montgomery, Jeff Chester, Deven McGraw, Chip Pitts, Anna Spencer, Drew Mitnick, Aymeric Dupont, Andrea Matwyshyn, Matt Daniels, Albert Gombis, Robert Destro, Niam Yaraghi, Hirdey Bhathal, Randy Farmer, Kathryn Serkes, Craig Konnoth, Michael Lavers, Anne Tamar-Mattis, Samantha Crane, Kellan Baker, Latanya Sweeney, Chris Vickery, Ifeoma Ajunwa, Lisa Gallagher, Marc Natter, Daniel Greenwood, Joe Selby, John Willbanks, Frank Pasquale, Corey Weigert, Christo Wilson, Paul Tiao, Nicholas Terry, Michelle DeMooy, John Verdi, and Adrian Gropper. | |
Fifth International Summit on the Future of Health Privacy |
Health information in the Age of SurveillanceTopics: Medical Privacy in the Workplace, Privacy in Japan, American Privacy Law, Research and Privacy, Using Patient Data in Research, Genetic Privacy, Student Privacy, Data Breaches, Patient-controlled Health Data, Wearables, Big Data, Electronic Medical Information, Patient Rights, Privacy and Epidemics, School Laptops, Spying and Surveillance, the New Ecology of Information. Speakers: Lawrence Gostin, Deborah Peel, Barry Chaiken, Deanna Fei, Jordan Robertson, Michelle DeMooy, Ifeoma Iajunwa, Craig Konnoth, Lindsay Wiley, Frank Pasquale, Masao Horibe, Joe Ali, Donna Cryer, Celeste Castillo-Lee, Bradley Malin, Deven McGraw, Lisa Schlager, Magdalena Goralczyk, Joe Selby, Alex (Sandy) Pentland, Mark Rothstein, Jean McEwen, Barbara Evans, Sharon Terry, Khaliah Barnes, Dissent, Bill Fitzgerald, Dale King, Cameron Russell, Bob Gregg, Maneesha Mithal, Ann Patterson, Stu Vaeth, Josephine Wolff, Bill Pewen, Alan Dahi, William Tasnoff, Debbie Bucci, Adrian Gropper, Joy Pritts, Bill Turner, Benjamin West, Deborah Hurley, Jocelyn Samuels, Shahid Shah, Lucia Savage, Janelle Burns, Hugo Campos, Randy Farmer, Mark Scrimshire, Clay Jenkins, and Andrew Dillon. | |
Fourth International Summit on the Future of Health Privacy |
Controlling Your Personal Health Information: Now Is the TimeTopics: Protecting Health Privacy, Ethics and Privacy, Big Data, Mobile Technology, Mobile Apps, HIPAA Protections, Privacy and Mental Health, Genetics, Health Information in Research, Healthcare Laws, Real World Privacy Problems, New Healthcare Models, Health Data Exchanges, Consent and HIPAA, Lack of Transparency in Sharing Health Data, Individual Control over Personal Health Data, Surveillance using Healthcare Data, Individual Rights, and Re-identification Realities. Speakers: Lawrence Gostin, Deborah Peel, Shahid Shah, Anita Allen, Nicolas Terry, Andrea Matwyshyn, Kirk Nahra, Frank Pasquale, Kathryn Serkes, Peter Schaar, Mark Rothstein, Deven McGraw, J.J. Nietfield, Alison Rein, Sonia Suter, Jeremy Grant, Latanya Sweeney, Debra Diener, Ranieri Guerra, G.S. Hans, Joanne McNabb, Cliff Baker, Leo Dittemore, Omar Khawaja, Corrine Carey, Mark Jacobs, John (Mike) Davis, Helen Oscislawski, David Staggs, Tim Andrews, Damon Davis, Shaun Grannis, Mariann Yeager, Karen DeSDalvo, Kimberly Gray, Michelle DeMooy, Deborah Hurley, Andy Oram, Kaliya Hamlin, Paul Hattis, Nathan Wessler, Peter Levin, Joan Antokol, Adrian Gropper, Joy Pritts, Ron Walters, and Adam Tanner. | |
Third International Summit on the Future of Health Privacy |
The Value of Health Data vs. Privacy: How Can the Conflict Be Resolved?Topics: Data Privacy, European Data Protection, Health Data Beyond Healthcare, theDataMap Documents More Flows of Personal Health Data Sharing, Constitutional Privacy, Supreme Court Cases, U.S. Companies and European Data Requirements, Health Data and Organized Crime, Religion and Privacy, Patient Data in the Cloud, Big Data, Information and Medicine, Patient Personal Story About Loss of Privacy, Health Data Inside Healthcare, Chief Information Officiers and Privacy, the Omnibus Privacy Rule, Psychiatric Data, Newtown Shooting and Personal Health Data, Consent for Research, Data Segmentation, and Louis Brandeis' Right to Privacy. Speakers: Lawrence Gostin, Deborah Peel, Peter Hustinx, Natasha Singer, Michelle DeMooy, Ranieri Guerra, Cora Han, Davbid (Doc) Searls, David Wiggin, Latanya Sweeney, Marc Rotenberg, Frank Pasquale, Lara Ballard, Beatrice Covassi, William Pewen, Jordan Robertson, Bob Greggg, Ron Ross, Aaron Titus, Pablo Molina, Michelle Little, Gen Varahi, Debra Diener, Adrian Gropper, Kim Little, John McDaniel, Manesesha Mithal, Deborah Hurley, Peter Bootsma, Deborah Golden, David Jacobs, Mark Luker, Todd Park, Leon Rodriguez, Scott Monteith, Joseph Conn, David Chao, Barbara Evans, Anil Jain, David Muntz, Kathryn Serkes, Cliff Baker, M. Peter Adler, Leo Dittemore, Omar Khawaja, Nicolas Terry, Susan McAndrew, Sherri Morgan, Brian Selfridge, Candice Weatherly, H. Westley Clark, Demelza Baer, James Pyles, Patricia Rehmer, Ron Walters, Phil Booth, Adrian Gropper, Micky Tripathi, Joy Pritts, Scott Weinstein, Matthew Arnheiter, Duane DeCouteau, David Staggs, Melvin Urofsky, Todd Park, Leon Rodriguez, and Marc Rotenberg. | |
Second International Summit on the Future of Health Privacy |
Is there an American Health Privacy Crisis?Topics: Privacy Culture, Security Awareness, Patient Stories about Privacy Loss, Technology Harms, More or Less Regulation, Privacy Risks in Data Sharing, Technology Solutions, Consumer Education, Privacy Principles, Technology Demonstrations, theDataMap Documents More Flows of Personal Health Data Sharing, Electronic Health Records, Physician Practices, Doctor-Patient Relationship, Religion and Privacy, Ethics of Sharing Personal Health Data, Health IT, Data Segmentation, Patient-Centered Privacy, Genetic Privacy, Social Media, Mobile Devices, Medical Devices, Implants, Online Health Websites, and Data in the Cloud. Speakers: Lawrence Gostin, Deborah Peel, Senator Ed Markey, Representative Joe Barton, Farzad Mostashari, Andrew Dillon, Lillie Coney, Maneesha Mithal, Pablo Molina, John Sabo. William Sage, Barry Chaiken, Frank Pasquale, Joy Pritts, James Pyles, Marcy Wilder, Hogan Lovells, James Koenig, Cathy Betz, Debra Bromson, Corinne Carey, Kurt Long, Mark Rothstein, Andrew Blumberg, Lee Tien, Kathryn Serkes, David Wansewr, Michelle DeMooy, Ross Anderson, David Hilgers, Latanya Sweeney, Michael Stearns, H. Westley Clark, Andrew Littm Fausto Meza, Scott Monteith, and Michael Weiner. | |
First International Summit on the Future of Health Privacy |
Getting IT Right: Protecting Patient Privacy Rights in a Wired WorldTopics: Public View of Privacy, Public VIew of Technology, Privacy Beliefs, Privacy in the Digital Era, Consent, Data Segmentation, Patient Control over Personal Data Sharing, Secondary Uses of Personal Health Information, Sorrell vs. IMS Health and the Supreme Court, Historical Perspectives of Privacy, Research and Privacy, Health IT Privacy and Security, Principles for the Collection and Use of Personal Health Data, Business Analytics and personal Data, the Public Good, Benefits of Sharing Personal Data Widely, Patient Control of Data Sharing, State Regulations, Educating the Public about Health Privacy, and Distributed Consent and Authorization. Speakers: Robert Hutchings, Deborah Peel, Anita Allen, Ross Anderson, Bridget Asay, Senator Nancy Barto, Andrew Blumberg, Benedicte Callan, Corinne Carey, Barry Chaiken, H. Westley Clark, Mike Davis, Michelle De Mooy, Duane Decouteau, Barbara Evans, Mark Frisse, Lisa Gallagher, Kimberly Gray, Stephania Griffin, Carl Gunter, Christian Hamann, David Hilgers, Robert Hutchings, Joe McCarron, Brian Mulconrey, Helen Nissenbaum, Andy Oram, Stephen Palmer, Stephanie Perrin, Joy Pritts, Jim Pyles, Jessica Rich, Wes Rishel, Jeffrey Rosen, William Sage, Michael Stearns, Steve Steffensen, Barry Steinhardt, Latanya Sweeney, Lee Tien, Guido van't Noordende, John Verdi, David Wanser, David Warner, and Alan Westin. |