Seventh International Summit on the Future of Health Privacy
Is Health Privacy a Human Right?
Overview
The Seventh International Summit on the Future of Health Privacy (“Health Privacy Summit”) was held in Washington, D.C., on June 1–2, 2017. Health Privacy Summit 2017 convened leading voices from law, policy, technology, medicine, and civil society to explore one of the most pressing questions of our digital age: Is health privacy a fundamental human right? Across two days of dynamic programming, the Summit brought together domestic and international experts to examine how emerging technologies, legal frameworks, and ethical principles intersect in the evolving landscape of health data.
The 2017 theme reflected the growing urgency to reconcile innovation in digital health with the protection of individual autonomy, dignity, and freedom. From patient rights and data security to artificial intelligence and global data governance, the Summit offered a deep dive into the future of health privacy—and the responsibilities we all share in shaping it.
During the Summit's Celebration of Privacy, Patient Privacy Rights awarded the Louis D. Brandeis Privacy Award to Nikolaus Forgo, for his extensive work in European research projects on clinical trials, privacy and consent. Additionally, PPR awarded the Top Data Detective Award to Ji Su Yoo, for her studies that exposed vulnerabilities in datasets and data-sharing practices.
Program
Full 2017 Program including agenda, speakers, bios and sponsors
Videos
Session 1 From Hippocrates to Human Rights
Session 2: Keynote: The GDPR and the European Vision for the Future of the Digital World by Isabelle Falque-Pierrotin
Session 3: Keynote: Autonomy, Dignity, Freedom - European Approaches to Data Protection in Medical Research and Treatment by Nikolas Forgo
Session 4: The EUs General Data Protection Regulations and its Impact on the US Moderated by Shahid Shah
Session 5: Health Privacy in the LGBTQIA Community - Electronic Health Records Systems and Sensitive Data Moderated by Kellan Baker
Session 6: Fireside Chat: Blockchain Technology and Health Data - How it works, what can it add and whats all the hype about with David Huseby
Session 7: Breakout A: State Health Databases - Re-identification of patient records and expansion of theDataMap
Session 7: Breakout B: Workplace Wellness and Employee Genetic Testing - Should employers and insurers have access to genetic tests Moderated by Ifeoma Ajunwa
Session 8: Breakout A: Patients use of Health Information Exchanges - Do they care, Can they get personal health data, How do they use it Moderated by Thomas Welch
Session 8: Breakout B: Recent Empirical Research on Health Privacy - Do young people care about health privacy, Is compelled disclosure of health information a major privacy issue by Mark A. Rothstein
Session 9: Keynote: Augmenting Human and Machine Intelligence to Improve Medical Care by Vikash Mansinghka
Session 10: Day 1 - Closing Remarks
Session 11: Day2 - Welcome
Session 12: Keynote: An Overview of Technology and the Health System by John Fleming
Session 13: Delivering Healthcare in the Age of Artificial Intelligence Moderated by Nikolas Forgo
Session 14: Breakout A: How Private are Your Prescriptions - The Importance of Access Restrictions for PDMPs Moderated by Nathan Freed Wessler
Session 14: Breakout B: What's new with theDataMap - Tracking flows of personal information by Latanya Sweeney
Session 15: 18 Companies Competing for Privacy - Has privacy innovation begun Moderated by Nikolas Forgo
Session 16: Closing Remarks
Session 17: Celebration of Privacy - Welcome
Session 18: Celebration of Privacy - Top Data Detective Award to Ji Su Yoo
Session 19: Celebration of Privacy - Louis D. Brandeis: Standing for the People
Session 20: Celebration of Privacy - Paul Brandeis Raushenbush
Session 21: Celebration of Privacy - Louis D. Brandeis Privacy Award to Nikolaus Forgo
Session 22: Celebration of Privacy - Closing
