Sixth International Summit on the Future of Health Privacy
Is Big Data the Beginning of the End for Privacy in Healthcare?
Overview
The Sixth International Summit on the Future of Health Privacy (“Health Privacy Summit”) was held in Washington, D.C., on June 7–8, 2016. As wearable devices and health and fitness tracking become commonplace, Patient Privacy Rights continues to champion and advance the individual's right to privacy through meaningful personal control of health information—wherever that information is collected and used. We educate, collaborate, and partner with stakeholders to strengthen privacy in law, policy, and technology, and to ensure that the benefits of using personal health information are realized with informed consent.
By 2016, there were encouraging signs of progress. Patients and consumers were increasingly demanding trustworthiness from technology companies. When Apple CEO Tim Cook publicly took a stand against unlocking an iPhone, others across the industry began to follow—an important signal that personal empowerment is a value users expect and will defend.
At the same time, big data continued to pose serious risks in health care, as massive datasets containing personal health information were created, shared, and analyzed without people’s explicit knowledge or consent. Is big data the end of privacy—or can we capture the benefits of data use while preserving the patient's right to consent? The 2016 Health Privacy Summit took up these questions head-on, exploring practical paths to innovation that do not sacrifice privacy.
During the Summit's Celebration of Privacy, Patient Privacy Rights awarded the Louis D. Brandeis Privacy Award to Joe Cannataci, for his scholarship and work as the United Nations Special Rapporteur on the right to privacy. Additionally, PPR awarded the Top Data Detective Award to Chris Vickery, for his uncovering personal information breaches on millions of Americans.
Program
Full 2016 Program including agenda, speakers, bios and sponsors
Videos
Session 1: Opening Session
Session 2: Keynote: Is Big Data Effectively the Beginning of the End of Privacy in Healthcare? by Joe Cannataci
Session 3: Keynote: Privacy, Autonomy and Power in a Smart, Connected World by Claudia Pagliari
Session 4: Plendary: Do Wearables, injestables and apps spill health data? Moderated by Jana Kasperkevic
Session 5: Plenary: Will the EU Privacy Shield and EU data regulations affect the US? Moderated by Chip Pitts
Session 6: Breakout A: Privacy as a Fundamental Human Right Moderated by Matt Daniels
Session 7: Breakout B: As Health Data Exchanges Grow, What Rights do Patients Have? Moderated by Niam Yaraghi
Session 8: Breakout C: Privacy & the LGBTI Community Moderated by Michael Lavers
Session 9: Plenaary: theDataMap Moderated by Latanya Sweeney
Session 10: Chris Vickery: Down the Rabbit Hole
Session 11: Keynote: Unlimited Worksplace Surveillance by Ifeoma Ajunwa
Session 12: Keynote: Mad Men: The Secret Origins of the Medical Data Business by Adam Tanner
Session 13: Plenary: IT Solutions for Privacy & Research Moderated by Lisa Gallagher
Session 14: Plenary: How will the coming AI revolution transform healthcare? Moderated by Frank Pasquale
Session 15: Keynote: Will the Apple Effect lead to privacy in healthcare? Moderated by Paul M. Tiao
