Third International Summit on the Future of Health Privacy
The Value of Health Data vs. Privacy: How Can the Conflict Be Resolved?
Overview
The Third International Summit on the Future of Health Privacy (“Health Privacy Summit”) was held in Washington, D.C., on June 5–6, 2013—an especially consequential year for privacy. President Obama’s 2012 Consumer Privacy Bill of Rights had brought renewed attention to the gaps in data privacy protections across the U.S. economy. At the same time, global interest in expanding commercial access to health data was rapidly growing. The European Union was revising its data protection framework to strengthen safeguards for personal information, while in the United States the 2013 Omnibus Privacy Rule made important advances in data security even as it weakened certain privacy protections originally intended by Congress for health data.
Against this backdrop, major corporations and emerging technology firms were beginning to respond to public concern about the hidden collection and use of personal information by developing privacy-enhancing products that give individuals greater control. Summit discussions reinforced—and encouraged—this momentum, calling on companies to demonstrate respect for privacy by building meaningful, privacy-protective options into new technologies from the start.
During the Summit's Celebration of Privacy, Patient Privacy Rights awarded the Louis D. Brandeis Privacy Award to Peter J. Hustinx, in recognition of his leadership as European Data Protection Supervisor, and Mark A. Rothstein, for his outstanding contributions to bioethics and genetic privacy.
Program
Full 2013 Program including agenda, speakers, bios and sponsors
Videos
Session 1: Opening and Introduction
Session 2: Keynote: Peter Hustinx: A Health Check on Data Privacy
Session 3: The Value of Health Data OUTSIDE Healthcare Moderated by Natasha Singer
Session 4: Latanya Sweeney: theDataMap Update to All the Places Your Health Data Goes
Session 5: Keynote: Marc Rotenberg: The Constitution and Privacy: Why The Supreme Court Cares
Session 6 Breakout A: Does the U.S. Need E.U Data Protections? Should U.S Companies Meet E.U. Requirements? Moderated By Frank Pasquale
Session 6 Breakout B: What is the Value of Health Data to Organized Crime? Moderated by Jordan Robertson
Session 7: Cultural Pespectives on Religion and Privacy Moderated by Pablo Molina part 1 of 3
Session 8: Cultural Pespectives on Religion and Privacy Moderated by Pablo Molina part 2 of 3
Session 9: Breakout A: Cultural Pespectives on Religion and Privacy Moderated by Pablo Molina part 3 of 3
Session 9 Breakout B: Patient Data in the Cloud: How is it Used? How is it Protected? Moderated by Debra Diener
Session 10: Big Data, Big Problems, Big Solutions? Moderated by Deorah Hurley
Session 11: Keynote: Todd Park, U.S. Chief Technology Officier
Session 12: Celebration of Privacy: Louis D Brandeis Award to Mark A. Rothstein
Session 13: Celebration of Privacy: Louis D Brandeis Award to Peter J. Hustinx
Session 14: KeyNote: Leon Rodriquez: Information is Powerful Medicine
Session 15: Scott Monteith: Patient Story About Loss of Privacy
Session 16: The Value of Health Data INSIDE Healthcare Moderated by Joseph Conn
Session 17 Breakout A: Chief Information Officiers (CIOs) and Privacy, Moderated by Cliff Baker part 1 of 2
Session 18 Breakout B: Chief Information Officiers (CIOs) and Privacy, Moderated by Cliff Baker part 2 of 2
Session 17 Breakout B: The Omnibus Privacy Rule - Are We Done Now? Moderated by Nicolas P. Terry
Session 17 Breakout C: Newtown and the Privacy of Psychiatric Data Moderated by H. Westley Clark part 1 of 3
Session 18 Breakout C: Newtown and the Privacy of Psychiatric Data Moderated by H. Westley Clark part 2 of 3
Session 19 Breakout C: Newtown and the Privacy of Psychiatric Data Moderated by H. Westley Clark part 3 of 3
Session 19 Breakout D: Consent for Research - Do We Need It? Moderated by Ron Walters
Session 20: Keynote: Melvin Urofskey: Louis Brandeis and the Origins of a Right to Priavcy
