Protecting Americans from health data harms
We fight to keep your health information from being sold, shared, or used against you — through research, policy reform, and holding healthcare systems accountable.
Why privacy matters
Patient privacy is about far more than medical records — it's about protecting your ability to live freely and safely. When your health information gets out, it can affect your job, housing, education, and credit.
The Problem
Today's healthcare system makes you choose: get medical care or protect your privacy. Federal privacy laws have major gaps, and protections vary wildly from state to state.
The Gap
Once a hospital or insurer shares your health information, they don't have to tell you who received it, how it's being used, or what happens if something goes wrong.
Our Mission
We work to give you real control over your health information — and to make sure hospitals, insurers, and tech companies are transparent about how they use it.
What we do
From landmark legislation to cutting-edge research, PPR works on every front to protect your health data.
Education
Plain-language guides for 30+ situations where your health data is at risk — at the doctor, at work, and with insurers.
See the guidesResearch & Tech
Tools that track where your data goes and a 75-point checklist to hold tech companies to real privacy standards.
See our workPolicy & Advocacy
Won landmark federal protections that ban selling your health data without permission and require companies to notify you of breaches.
See the winsSummit Archive
Seven years of international convenings with leaders from healthcare, government, law, and tech.
Browse the archiveProven legislative impact
Together with 50+ organizations representing over 10 million Americans, we won landmark federal protections for your health data in 2009 — and we're still fighting.
See our legislative victoriesYour data. Your rights. Your health.
Your support helps us fight for stronger privacy laws, expose data misuse, and give patients the tools to protect themselves.